Country Concert for Cystic Fibrosis
Patients with cystic fibrosis (CF) recover from exacerbations equally well if they are treated at home or in a hospital, according to researchers from Johns Hopkins University. Furthermore, longer treatment with antibiotics does not appear to offer any additional benefit over shorter courses...
Country Concert for Cystic Fibrosis
Teens from across the United States whose siblings have cystic fibrosis will press their elected officials in Washington, D.C., June 24, to fund drug research and increase access to clinical trials for those with rare diseases. Their goal is to speed the development of new drugs for people who need them most...
Country Concert for Cystic Fibrosis
Transave, Inc., reported interim results from a multi-cycle Phase II open label clinical trial in cystic fibrosis (CF) patients on its lead investigational drug, ARIKACE™ (liposomal amikacin for inhalation)...
Country Concert for Cystic Fibrosis
Eurand Pharmaceuticals, Inc., a subsidiary of global specialty pharmaceutical company Eurand N.V...
Country Concert for Cystic Fibrosis
In addition to their suffering, rare disease patients often have to face the harsh reality that few pharmaceutical companies will ever be able to offer new treatments for their condition because the costs of new treatments will never be recovered from such a small market. But there are ways they can be helped. The U.S...
Country Concert for Cystic Fibrosis
An emerging population of middle-aged cystic fibrosis patients contains significantly more females and includes a large proportion of patients who lived for decades without a diagnosis or specialized care, according to research published by researchers at National Jewish Health...
Country Concert for Cystic Fibrosis
Mpex Pharmaceuticals, Inc. announced the presentation of data from its Phase 2b clinical trial with Aeroquin™ (a proprietary aerosol formulation of levofloxacin, MP-376) in cystic fibrosis (CF) at the American Thoracic Society (ATS) Annual Meeting in New Orleans...
Country Concert for Cystic Fibrosis
| We are delighted to announce that Dr. Robert J. Beall, president and CEO of the CF Foundation and Dr. Francis S. Collins, director of the National Institutes of Health (NIH) will brief the United States Senate on the ongoing efforts to develop promising medical research for rare diseases this Thursday, May 20.
Call your senators today and urge them to attend this exciting event! The briefing will discuss how funding for medical research at NIH can be used to more quickly create new therapies for patients and save lives. The NIH is the primary federal agency for conducting and supporting medical research. Speakers will also discuss the lessons learned from the cystic fibrosis community’s successes in medical research that can map the way for other diseases. Dr. Collins, a distinguished geneticist who led the international effort to map the human genome, is the co-discoverer of the cystic fibrosis gene. Did you know that May is Cystic Fibrosis Awareness Month? May is Cystic Fibrosis Awareness Month. You can help keep your members of Congress informed about the needs of people with cystic fibrosis by urging them to attend the Foundation’s congressional briefing on Thursday, May 20. |
NIH Director Dr. Francis Collins talks about his dream for cystic fibrosis and the future. |
| What: The Cystic Fibrosis Foundation and FasterCures invite you to a briefing that spotlights the nation’s investment in medical research at the NIH and examines how these dollars can be leveraged to create new therapies for patients and save lives.
Who:
When: Thurs., May 20, 2010, 10 a.m. – 11 a.m. Where: Dirksen Senate Office Building, G-11 Why: “The Cystic Fibrosis Foundation has shown the way, has lit up the path…and what’s been learned from CF can be extrapolated, generalized, to hundreds of other diseases,” Francis S. Collins, M.D., Ph.D., Director of the National Institutes of Health The past few decades have brought exciting scientific breakthroughs necessary to understand, diagnose, and treat many diseases. However, the ability to translate exciting advancements into treatments that can help patients severely lags behind the pace of innovation. On average, it takes 15 years to turn a scientific discovery into a viable therapy. For the millions of Americans who live with chronic and fatal diseases, this is simply too long to wait. Fifty years ago, people with cystic fibrosis did not live long enough to attend grade school, but today, there are more than 30 drugs in a CF drug development pipeline and the median life expectancy for someone with the disease is 37 years. NIH Director Dr. Francis S. Collins, Dr. Robert J. Beall of the Cystic Fibrosis Foundation, and Margaret Anderson of Faster Cures will address:
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Country Concert for Cystic Fibrosis
Aradigm Corporation (OTCBB:ARDM) (the "Company") announced it received clearance from the U.S. Food and Drug Administration (FDA) for its inhaled liposomal ciprofloxacin Investigational New Drug (IND) application...
Country Concert for Cystic Fibrosis
Thousands of cyclists will take to the streets this summer and fall as the Cystic Fibrosis Foundation launches a new cycling tour in 18 cities across the country to support research to find new therapies and a cure for cystic fibrosis. The tour series, known as ZENPEP® CF Cycle for Life begins in San Francisco on June 26. The event's title sponsor is Eurand N.V...
Country Concert for Cystic Fibrosis
WILKES-BARRE, LUZERNE COUNTY – Kirby Park was filled with walkers of all ages on Saturday.
They were there with one purpose in mind — to help conquer Cystic Fibrosis. It’s a life-shortening disease that strikes 30,000 children and adults — a disease that causes great difficulties with a person’s respiratory and digestive systems. “People with cystic fibrosis in order to live a healthy life face challenges every day… treatments to clear their lungs, enzymes before they eat,” said Linda Capozello.
She is Executive Director of the Cystic Fibrosis Foundation’s Northeastern Pennsylvania Chapter. She helped organize this Great Strides walk — a fund-raiser that’s drawn about twice as many walkers as last year. “Certainly when you have a childhood illness, people do come around and are very generous and kind and supportive,” said Capozellol. Many people decided to form teams for people they know who are stricken with cystic fibrosis. Crestwood 7th Grader Bethanie Jones formed Team Macho Brothers. She rounded up some friends to walk on behalf of her two cousins who both have cystic fibrosis. “I feel bad because they don’t really have a big life span and, like, I want them to survive as long as they can,” said the Luzerne County girl. “I want them to be normal and not have to worry about it when they get older.”
Getting older wasn’t much of an option for children with cystic fibrosis a half-century ago. Few lived long enough to enter grade school. But, today, many make it into adulthood. “The average life expectancy is now 37 years of age,” said Capozello. “But we’re making wonderful strides and we’re pushing that back literally by years.”
Giving people with cystic fibrosis — and their families — reason to keep trying to find a cure — one step at a time. The goal was to raise $35,000 at the Great Strides walk. All of the money raised goes toward research and treatment of cystic fibrosis.
Country Concert for Cystic Fibrosis
Aided by a new experimental model, scientists are a step closer to understanding how cystic fibrosis (CF) causes lung disease in people with the condition. The findings, published online April 28 in the journal Science Translational Medicine, could help improve treatments for lung disease, which causes most of the deaths and disability among people with CF...
Country Concert for Cystic Fibrosis
Inherited diseases such as cystic fibrosis can be caused by genetic "nonsense mutations" that disrupt the way human cells make proteins. David Bedwell, Ph.D., a professor in the University of Alabama at Birmingham (UAB) Department of Microbiology, says scientists are now closer to producing drugs that will fix this disruption and drastically improve treatment of genetic disease...
Country Concert for Cystic Fibrosis
THANK YOU SO EVER MUCH to all who came to the Shalimar last night in support of the Team Pounding the Pavement for Paige ,Great Strides Cystic Fibrosis Fundraiser.
We had a GREAT turnout and support for CF and truly appreciate everyone’s generosity….Thank you to all who donated raffle prizes and gift certificates,and to the Shalimar….Thank you also to those who couldn’t make it but told a friend ,spread the word and kept us in your thoughts….The fundraiser was a huge success….please remember that AUG 22 is the large fund raising benefit, the 3rd Annual Country Concert for CF & Motorcycle Ride…This year we are kicking it up a notch with KARTUNE and the other Great Bands are Farmers Daughter,the Tim Johnson Band,Crossfire, Jenne Zano,Big Carl & the MudPond Boys,Crystal Martinez we are going to have nonstop live great music and so much stuff for you to do …look for all of our ads and updates and of course…www.cfconcert.com has all the info….Thank you very much Again….Carol Davis (member of “Team Pounding the Pavement for Paige”)
Country Concert for Cystic Fibrosis
Saturday, April 24th at the Shalimar in Mountain Top, PA for a CF Great Strides Fundraiser. Help us raise money for the upcoming walk at Kirby Park in Wilkes-Barre.
$5 donation at the door
Music by DJ JT and Carol
Basket raffles, 50/50, jello shots and fun all night from 8 p.m. to 1 a.m.
Hosted by “Team Pouding the Pavement for Paige”
Country Concert for Cystic Fibrosis
Cystic fibrosis (CF) is the most common life-threatening autosomal recessive disease in Caucasian children; it has an incidence of 1 case in every 2500 children born alive...
Country Concert for Cystic Fibrosis
Saturday, April 24th at the Shalimar in Mountain Top, PA for a CF Great Strides Fundraiser. Help us raise money for the upcoming walk at Kirby Park in Wilkes-Barre.
$5 donation at the door
Music by DJ JT and Carol
Basket raffles, 50/50, jello shots and fun all night from 8 p.m. to 1 a.m.
Hosted by “Team Pouding the Pavement for Paige”
Country Concert for Cystic Fibrosis
Country Concert for Cystic Fibrosis
The Cystic Fibrosis Foundation announced that its Facebook page has surpassed 60,000 fans - double the number of people in the United States who have cystic fibrosis, a rare and fatal genetic disease. This rapid growth may reflect the need for people with CF to come together and exchange information in a setting that does not put their health at risk...
Country Concert for Cystic Fibrosis
Gilead Sciences, Inc. (Nasdaq:GILD) announced that the U.S. Food and Drug Administration (FDA) has granted marketing approval for Cayston(R)(aztreonam for inhalation solution) as a treatment to improve respiratory symptoms in cystic fibrosis (CF) patients with Pseudomonas aeruginosa (P. aeruginosa)...
Country Concert for Cystic Fibrosis
We have a new antibiotic in the arsenal to help fight the life-threatening infections associated with cystic fibrosis.
Yesterday, the FDA approved an important new inhaled antibiotic called Cayston® (aztreonam for inhalation solution) for the treatment of CF. The drug was made possible by significant support from the Cystic Fibrosis Foundation, including an early $1 million investment to help develop the therapy.
Developed by Gilead Sciences, Inc., Cayston offers a much-needed antibiotic alternative for CF patients who battle recurrent lung infections and develop resistance to existing antibiotics.
Cayston is administered with a new device called Altera that allows patients to take the medicine in less than five minutes, a fraction of the time required for other inhaled antibiotics.
This shortened delivery time reduces the burden on patients, who – on average — have a treatment regimen of three to four hours per day.
Cayston will be available by the end of next week. Patients interested in learning more about Cayston should consult their physicians.
The approval of Cayston demonstrates that our drug development model, fueled by donors and volunteers like you, is working and making a real difference in the lives of people with cystic fibrosis.
To help continue our progress in the fight against CF, please consider making a tax-deductible donation to the CF Foundation today.
Thank you for all you do.
Sincerely,
Robert J. Beall, Ph.D.
President and CEO
Cystic Fibrosis Foundation
800-FIGHT-CF
info@cff.org
www.cff.org
Country Concert for Cystic Fibrosis
Please Save the Date for the 3rd Annual CF Concert & Motorcycle Ride on Sunday AUG 22,2010 at the American Legion Post 781 Grounds in Mountain Top,Pa (approx 1mile off of the Nuangola Exit on 81 or 3 miles from RT 309)… Concert Starting at 1pm.. General Admission to CONCERT only $5.00 Donation/Children under 12 FREE.. In addition to the GREAT BANDS, the Concert will also feature:
Beer,Soda & Water only $1.00…So much to do we can’t fit it on the page CONCERT WILL FEATURE an Up CLose and Personal Concert Sponsored by FROGGY 101
 Farmer's Daughter |
|
 Crystal Martinez |
 Big Carl & the Mudpond Boys |
Both include a delicious PIG ROAST LUNCH at conclusion of ride at the American Legion MT Top… Sign-In starts at 9:30am -11:30 at the KMART parking lot on RT 309 WB.. Donuts, coffee and water provided by Dunkin Donuts WB/& Paiges Family… Ride leaves promptly from KMART parking lot at 11:30 with a 65 mile ride that will go 309 to 437 through Freeland and the Conyingham Valley and the ride concludes at the American Legion Post 781 where your lunch and a great day awaits you… First 200 to arrive at legion will also recieve Thank you bags…
Country Concert for Cystic Fibrosis
In a study that could lead to new therapeutic targets for patients with the cystic fibrosis, a research team from the University of California, San Diego School of Medicine has identified a defective signaling pathway that contributes to disease severity...
Country Concert for Cystic Fibrosis
As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs. BJ's has been involved with the Foundation since 1998 and is one of its largest and most loyal corporate supporters...
Country Concert for Cystic Fibrosis
Solvay Pharmaceuticals, Inc...
Country Concert for Cystic Fibrosis
One of the Cystic Fibrosis Foundation's most active volunteers will carry the Olympic Torch today in Calgary as it makes its way to Vancouver and the Opening Ceremony for the 2010 Olympic Winter Games. Liz Burns, incoming board president for the Foundation's Georgia Chapter, has helped raise more than $600,000 for CF research, care and education programs...
Country Concert for Cystic Fibrosis
Johns Hopkins University researchers have created biodegradable nanosized particles that can easily slip through the body's sticky and viscous mucus secretions to deliver a sustained-release medication cargo...
Country Concert for Cystic Fibrosis
Boston University School of Medicine's (BUSM) Pulmonary Center has received a two-year $1.4 million grant from the National Heart, Lung, and Blood Institute to derive stem cells and lung progenitors from patients with lung disease...
Country Concert for Cystic Fibrosis
An increase in the number of screened carriers for cystic fibrosis (CF) was associated with a decrease in the number of children born with CF in northeast Italy, according to a study in the December 16 issue of JAMA. Some studies have suggested that there has been a progressive decrease in the incidence of newborns with CF in some areas...
Country Concert for Cystic Fibrosis
Researchers have made an important discovery about the secret life of the defective protein that causes cystic fibrosis: while scientists already knew that CFTR protein regulates the acid-alkali balance in cells, what they didn't know, until this study revealed it, was what turns that ability on and off...
Country Concert for Cystic Fibrosis
A team of researchers studying the protein that, when defective or absent, causes cystic fibrosis (CF) has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry...
Country Concert for Cystic Fibrosis
Gilead Sciences, Inc. (Nasdaq: GILD) announced that the Anti-Infective Drugs Advisory Committee of the U.S. Food and Drug Administration (FDA) has recommended that aztreonam for inhalation solution be approved for the treatment of infections due to Pseudomonas aeruginosa (P. aeruginosa) in patients with cystic fibrosis (CF)...
Country Concert for Cystic Fibrosis
In an encouraging new development, a team led by Scripps Research Institute scientists has restored partial function to lung cells collected from patients with cystic fibrosis. While there is still much work to be done before the therapy can be tested in humans, the discovery opens the door to a new class of therapies for this and a host of other chronic diseases...
Country Concert for Cystic Fibrosis
Genta Incorporated (OTCBB: GETA) announced that the Company will supply Ganite® (gallium nitrate injection) for a new clinical trial that will be initiated in patients with cystic fibrosis (CF) who may develop serious infections. Infection is the most common cause of death in CF patients...
Country Concert for Cystic Fibrosis
The Cystic Fibrosis Foundation announced today that CVS/pharmacy and Warner Home Video will partner with the Foundation this holiday season to raise critical funds for cystic fibrosis through the sale of classic family movies. The videos will be sold exclusively at CVS/pharmacy...
Country Concert for Cystic Fibrosis
For the first time, scientists have successfully used a method called exome sequencing to quickly discover a previously unknown gene responsible for a mendelian disorder. Mendelian disorders, such as cystic fibrosis and sickle cell disease, are the result of one or more mutations in a single gene, typically a gene that makes a protein...
Country Concert for Cystic Fibrosis
Scientists at the University of Pennsylvania School of Medicine discovered that a dietary antioxidant found in such vegetables as broccoli and cauliflower protects cells from damage caused by chemicals generated during the body's inflammatory response to infection and injury...
Country Concert for Cystic Fibrosis
Inspire Pharmaceuticals, Inc. (NASDAQ: ISPH) announced today patient enrollment is complete in three of its late-stage clinical trials...
Country Concert for Cystic Fibrosis
Cystic fibrosis carrier testing should be offered to all couples considering pregnancy and to women in early pregnancy and their partners, according to the authors of a study published in the Medical Journal of Australia...
Country Concert for Cystic Fibrosis
The American Thoracic Society has released new clinical guidelines for the treatment of exacerbations in cystic fibrosis based on a review of the literature on current clinical practices. "This is the first such comprehensive and evidence-based systematic review of best practices for pulmonary exacerbation of cystic fibrosis," said Susanna McColley, M.D...
Country Concert for Cystic Fibrosis
Phase 1/2 clinical trial results with KB001, a Humaneered™, high-affinity antibody fragment under development by KaloBios Pharmaceuticals, Inc. in cystic fibrosis patients showed an acceptable safety profile as well as trends toward reducing tissue inflammation and clearance of the bacterium...
Country Concert for Cystic Fibrosis
NanoBio Corporation today announced compelling preclinical data for NB-401, a nebulized nanoemulsion-based agent that kills highly drug-resistant strains of bacteria commonly found in cystic fibrosis patients. Currently there are limited treatment options available that effectively address these resistant bacteria...
Country Concert for Cystic Fibrosis
Solvay Pharmaceuticals, Inc. announced that Phase III data published in the Journal of Cystic Fibrosis showed that CREON® (pancrelipase) Delayed-Release Capsules, the most prescribed pancreatic enzyme replacement therapy (PERT) in the United States, significantly improves a key measure of fat absorption in patients with CF who suffer from exocrine pancreatic insufficiency (EPI)...
Country Concert for Cystic Fibrosis
Francis S. Collins, M.D., Ph.D., the new NIH director who led an international effort to map the human genome and co-discovered the gene responsible for cystic fibrosis, will address more than 3,000 leading scientists and clinicians from around the world at the 23rd annual North American Cystic Fibrosis Conference (NACFC). Held in Minneapolis from Oct...
Country Concert for Cystic Fibrosis
Nationwide Children's Hospital has been selected to serve as one of 13 special translational research centers in a network of 77 clinical trial sites that are part of the Therapeutics Development Network (TDN) of the Cystic Fibrosis Foundation. The translational research centers will lead the newest Phase I clinical trials and provide scientific direction to the entire network...
Country Concert for Cystic Fibrosis
Eric Wedge, manager of the Cleveland Indians, is joining the fight against cystic fibrosis (CF), a fatal genetic disease. Wedge and 17-year old Michaela Mullet will star in a public service announcement (PSA) to be aired during a Cleveland Indians game against the Chicago White Sox on Monday evening, September 28...
Country Concert for Cystic Fibrosis
A cure for cystic fibrosis, HIV-fighting 'Trojan horses', new pharmaceuticals from the ocean. Chemical biologists use new and innovative approaches to discover medications of the future. On 24 August, some of the field's most prominent researchers will attend an international conference in Gothenburg, Sweden. In the field of chemical biology, chemists and biologists cooperate to investigate, and eventually control, the behavior of cells.
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