Posted by Cystic Fibrosis Country Concert | Posted in Country Concert for Cystic Fibrosis | Posted on 20-07-2010
Country Concert for Cystic Fibrosis
Visit Your Representative in Your Community
YOU can help more people participate in CF clinical trials, increase awareness of CF, and foster relationships between members of the CF community and Congress by signing up for Make Every Breath Count, the CF Foundation’s third annual national advocacy campaign.
Six year old Ella Deveaux kicked off the 2010 Make Every Breath Count campaign by meeting with Senator Ron Wyden in Oregon. “It was a wonderful experience for Ella to meet with Senator Wyden,” said her father, Oregon State Advocacy Chair Jon Deveaux. “Our family is so grateful for his efforts to ensure new therapies for patients who need them, like Ella.”
Sign up for Make Every Breath Count to speak out for CF. Once you register, your State Advocacy Chair or a Foundation staff person will give you the tools and support you will need to meet with your members of Congress.
24 Teens Make Their Voices Heard on Capitol Hill during Teen Advocacy Day 2010
On Thursday, June 24, two dozen teens from all over the country came to Washington, DC to advocate on behalf of their siblings, cousins, and friends with cystic fibrosis.
Thanks to the combined power of your efforts and the advocacy of these teens, 14 additional members of Congress signed on to cosponsor the “Improving Access to Clinical Trials Act” within days of the event, with more working to join the legislation soon.
Your calls, emails, letters, and meetings are working! Please keep up the pressure by:
- Registering for the Make Every Breath Count campaign.
- Calling and writing your senators about the clinical trials bill, and, ask your friends, family, and co-workers to do so as well!
You can help ensure new therapies for CF and other diseases move swiftly from the research stage into the hands of patients who need them.
Thank you for your support!
